Brooke Landau's Fight Against Lyme Disease

Reported by: Elex Michaelson
Email: elex.michaelson@sandiego6.com
Last Update: 1/31 10:20 pm
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Brooke Landau endured three spinal taps in three years looking for a cure.
Brooke Landau endured three spinal taps in three years looking for a cure.

You've seen her delivering weather on the weekends. Showing off her goofy skills from 7-9 AM and her more serious side during the 10 PM newscast.

But you may not know that Brooke Landau is often in pain when on camera. She still suffers debilitating headaches as a result of her lyme disease condition -- the fastest growing infectious disease in the country.

Brooke had never heard of lyme disease -- and never even thought about broadcasting -- fourteen years ago. But, all of a sudden, her life changed when she least expected it.

"I was one year out of college, climbing the corporate latter, had a great job when all of a sudden I went to bed absolutely fine one night and woke up paralyzed from the waste down and couldn't move my head from the neck up and had no idea what happened to me," she said.

Brooke grew up in Connecticut and was often bit by ticks. She hadn't pulled a tick off of her body in a year when all of a sudden, her attack happened. "You get ticks, you pull them off, you don't necessarily think anything of it.  So I took it off and was perfectly fine for a year and all of a sudden just woke up that morning unable to move and had no idea why."

Brooke's case was more severe than most. She said most people with lyme can get flu-like symptoms or other indications they are sick. If they are treated in time, with the right antibiotics, they can feel fine within a few weeks.

But Brooke didn't notice any signs of lyme before her night of paralysis. In fact, lyme isn't that easy to spot. "Its actually called the Great Pretender, because it mimics so many other diseases" she said.

"If you don't get it right away, it's incredibly difficult to diagnose. If they can't diagnose you, they can't treat you. The test is inaccurate 60 percent of the time, so for 7.5 years, I couldn't get a positive blood test."

Frustrated by continually feeling sick, doctors couldn't figure out what was wrong with her. Brooke said the disease didn't affect her appearance much and some physicians challenged the legitimacy of her complaints. Almost no one thought it was lyme.

"They would tell me that I was crazy and it was all in my head and they would send me to psychiatrists and unfortunately, that's very common. Hundreds of thousands of people are told that."

She had three different spinal taps in three years. She was diagnosed with everything from MS to Lupis. Doctors prescribed more than 40 pills for her to take each day. Over the years, she calculated that she took 926,000 pills.

"After a while you don't know if you are sick because of a disease, or are you sick because you are over-medicated" she said.

Among the conditions she endured: "I lost hearing in my left ear, lost my sight, lost my short term memory, I developed spinal meningitis, gallstones, colitis, heart arhythmia, palpitations, my hair started falling out, I lost weight, I lost a quarter of my body weight and the list just goes on and on."

At her lowest point, she almost lost hope. "I remember lying on the gurney, going into the operating room and saying to my mother, I would be OK if I just didn't wake up this time."

Eventually, one doctor did believe her. In fact, he made her his research project. He had a tube pump medicine straight into her heart. She also went in and out of a hyperbaric chamber for 30 days.

On the 30th day, she felt dramatically better. She wasn't cured of the disease--although she still had never officially tested positive for it.

Because Brooke and thousands others never tested positive for the disease, her doctor ended up having his license suspended.

According to Brooke, that's not uncommon in lyme. Because the lyme test is inaccurate 60 percent of the time, insurance companies can charge that doctors are over-prescribing medication.

"The accusation is doctors are over-treating these diseases with all these antibiotics, and we are actually putting patients at risk" said Dr. Therese Yang of Santee.

Yang runs the only lyme clinic in San Diego and is one of California's leading lyme specialists. She believes that if antibiotics are used to treat acne, they should be allowed with lyme.

Yang runs Dr. Yang's Family care and works for free in order to provide better service. Without much support from insurance companies, Yang and her patients often have to buy medication out of pocket.

"You can get resourceful. Sometimes we'll try a less expensive drug that might not be as successful but if it works, that's great" she said.

Yang said lyme is not just an East Coast problem. "The biggest misconception that there is no lyme in California and if you have lyme you got it somewhere else. We definitely have people who have never left California, that have never left San Diego, and they have CDC positive lyme."

She said you need to be careful if you are ever bitten by a tick.

A tick "actually cuts the skin and holds on, and then he actually spits his saliva into you to numb the area and turn your immune system off...You need a tweezer, you get in and grab the whole tick, especially the head." She said leaving the head inside the body could actually make the infection worse.

She said if you are bitten, "and if you develop a rash or any symptoms, you need to go see a doctor."

Her crowded office in Santee currently has a waiting list of 300 people. She needs financial support to keep it going.

Yang volunteers her time because she so believes in the cause. "It's very complex, it's hard to keep up with, and there is a huge political battle going on. I don't blame anyone who doesn't want to get involved with that, but they can't be like an ostrich, bury your head in the sand and hope the ostrich goes away."

For her, "the thing that keeps me going is the number of people who do get better."

Brooke is one of them. Tests show lyme is now gone from her system, although those tests are not reliable. She is feeling better now, and serves as a national spokesperson for lyme.

She receives thousands of emails every year from other survivors. Her message to them is simple.

No matter what the disease is or hardship, you need to stop asking why and start answering what? You need to stop asking 'why me? Why did it happen to me? Because it did. You have to start answering what I am going to do about this now that it has happened to me."

To donate to Dr. Yang, you can send a check to:

Dr. Yang's Family Care

10201 Mission Gorge Rd., Suite A

Santee, CA 92071

Or call 1-619-596-4963

You can also visit their website, http://dyfc.org.

Featured Comments
Freethinker - 2/5/2009 4:43 AM
Please arm yourself with the scientific data, they have/are committing scientific fraud with Lyme Disease. . Many diseases are linked to a borrelia infection, MS-FM-Chronic Fatigue-ALS-Autism--etc are just outcomes of a bacterial infection they called Lyme. . http://www.lymecryme.com . Read The Dearborn Conference "How the Test was Spun" to see how and why we are being “SCREENED OUT” with the 41+ year old ELISA (screening/meaning leaving all the neurological chronic Lyme infected people out). They do not want to pay for our long term treatment. . We are in possession of the FDA and the Dearborn Conferences meeting minutes, 1994…PROVING IN THEIR OWN WORDS, they have and are committing FRAUD. . Please read it, for you and your loved ones. Just think about it....it's in our blood supply as the RedCross does not have Lyme Disease or Mycroplasma et. al listed as *do not donate* if you have this. . Abolish the Bayh-Dole Act !!!

TK92130 - 2/4/2009 8:33 AM
Thank you Brooke for providing info that the current medical industry and general public needs to become informed on. Lyme and the co-infections are a more common problem that need a lot more attention. It is common for doctors to only look for common easy solutions and when it becomes more complex they either do not have the education or are not willing to investigate further. I like many others are struggling to get well from undiagnosed problems. Please keep up your informative contributions, your public position helps get the correct information out to those that need it. Thanks, TK, San Diego

tominsandiego - 2/1/2009 8:56 AM
Hi Brooke. Thanks for doing this story. My brother-in-law is being treating for Lyme with intensive courses of IV-antibiotics. Like you, he was misdiagnosed and improperly treated for several years. I had not heard about hyperberic chamber treatment. Do you know where I can find more information on that? Also, some of your viewers might be interested in seeing the documentary: Under Our Skin. Here's a link for excerpts. http://www.underourskin.com/watch_excerpt.html Viewers should be reminded to use insect repelent with DEET whenever venturing into the great outdoors. Best wishes for a healthy future, Tom Heffernan San Diego, CA

Amber74 - 2/1/2009 8:53 AM
Thank you so much Brooke for being brave enough to share your story with the public. After 35 doctors I was diagnosed by Dr. Yang in 2002. I tried but was unable to go through antibiotic treatment because of lack of husband and family support. They were unable to take me seriously. Because of that I was literally more afraid of dying while in treatment than living the way I was. Ihad gotton myself to a point where I could tolerate the pain, fatigue and brain fog. It took five years to get just there. Now I think I could do it on my own only now, divorced, I don't have the money. I'm tired of the limitation, the pain, etc... I'm still looking for an alternative treatments. Thank you so much for interviewing Dr. Kronenberg. I will look forward to hearing more about the Killer T Cells. I hope you continue to improve every day. You just do it right. :). I know you will keep us updated. D.F. La Jolla

BettyG Iowa - 2/1/2009 12:05 AM
Great story on Brooke! THANK YOU! I've had chronic lyme for 39 years; 35 yrs. MISDIAGNOSED by 40-50 doctors! Each had their own diagnosis, which I believed since they were "doctors"! I was very angry for taking all these years, and I had to pursue this lyme diagnosis by having a western blot igm/igg blood test done, and sent to Igenex, Calif.; 1 of best LYME DIAGNOSTIC labs in USA. Iowa does NOT have any fulltime CHRONIC LYME drs! We do a hand full of those learning, but who will see ONE lyme patient/wk up to 20 max! So I had to go OUT-0OF-STATE for lyme treatment/testings costing me $5,000 for appts, treatments, meds, blood labs galore, & another $1,000 for travel, lodging, & food! Lyme is NOT a cheap disease to have, and our insurance companies refuse to pay their "fair share". All we want is EQUAL TREATMENT like cancer and aids/hiv patients! That's NOT asking a lot. Our military has failed its troops by their being treated only by INFECTIOUS DRS, IDSA, who UNDER TREAT UP TO 3 WEEKS MAX ANTIBIOTICS, and do NOT believe in chronic lyme, which their patients will END up becoming! HOG WASH. Yes, the LYME WAR is very controversial between our good lyme literate mds, LLMDS, ILADS, Intl. Lyme Associate Society vs. IDSA, infectious disease society/infectious drs. Who is suffering due to this war; WE CHRONIC LYME & CO-INFECTION PATIENTS ARE! Pres. George W. Bush received prompt treatment for his lyme disease, paid for by the US taxpayers, and we just want the same care as HE received! NJ's Frank Pallone, chair of health subcommittee, has been holding up our lyme bill, HR 741, in congress refusing to SCHEDULE it to be debated by the committee. Our bills, HR 741 and S 1708 have been in congress for TEN YEARS! Pallone has received almost $500,000 in MEDICAL DRS. LOBBYIST MONEY; money talks and he LISTENS TO THEM. Our money goes for our lyme drs. Lyme mimicks 300 OTHER illnesses so it's hard to get a correct diagnosis PROMPTLY.





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